Can some of you help me ?

davieb · February 12, 2015, 12:30:50 PM

Hi All

I am after a little help with something not railway related
But I have a very Dear Friend that suffers from Narcolepsy and Cataplexy
There is a Drug available that could help her with this condition
But her local NHS Have refused her this Medication 7 times now
all because of the cost implications

so if you can take a little time to sign The e-petition below I would greatly appreciate it

http://www.narcolepsy.org.uk/news/please-sign-petition

Cheers
Dave

Agrippa · February 12, 2015, 12:38:21 PM

JUST SIGNED !

Bealman · February 12, 2015, 02:04:36 PM

Hi Dave

Me too

George

scotsoft · February 12, 2015, 02:15:23 PM

All done

Oldun · February 12, 2015, 02:19:51 PM

Done here also.

Roger

Malc · February 12, 2015, 02:38:03 PM

All done

Newportnobby · February 12, 2015, 02:41:36 PM

Signed

Good luck with the petition, Dave.

davieb · February 12, 2015, 02:42:59 PM

Thank you all for your support
It means a lot to me
And I know it will mean a lot to Jacky also

They won't even fund a 3 month trial
which if it did not work the drug company would refund the NHS

Once again

Dave

Newportnobby · February 12, 2015, 02:44:35 PM

Please keep us posted with the number of folks who've signed up. Hopefully we'll get Jacky what she needs.

davieb · February 12, 2015, 02:49:13 PM

I Will keep you all up to date with the progress

Here is a letter that her 8yr old son sent to the government
It isn't an easy read

Cheers

Dave

FeelixTC · February 12, 2015, 02:50:50 PM

Done. Good luck with it

REGP · February 12, 2015, 03:12:01 PM

Signed on the dotted line, as NPN wrote please keep us upto date with ant developments.

Regards to you both.

Ray

Geoff · February 12, 2015, 03:23:49 PM

Signed

Adam D · February 12, 2015, 03:58:13 PM

Signed, 3 members of SWMBO's direct family have cataplexy, not nice at all.

johnk · February 12, 2015, 04:18:47 PM

signed!