crohn's disease

[findus]

Hi guysafter some information direct from anybody who suffers with crohn`s disease!

I have now been in hospital for about a week with this condition, my insides are buggered and am needing an opp to remove the damaged area.

im being pumped up with steroids and morphine at the moment and have been given the option to dry drug treatment first what do you think? waste of time getting fat from steroids just to end up needing the opperation anyway or should i go with it?

Sorry in advance for poor spelling/grammer im not to well and my keyboard skills under drug use seeems very poor 

[OwL]

Hi Chris,

Let me just say that I cannot possibly understand or feel what you are going through at present, both physical and mental. I will say though that since I have joined the forum you have been a great inspiration to me and im sure many others with your understanding of N Gauge and Railways in general. You are a mighty fine character and your threads and cheerful comments speak leaps and bounds about you as a person and you are a credit to the forum and hobby,

Im sorry that I cannot help with your condition, but I can help by:

A) Being your mate
B) Being a shoulder to cry on (if you need)
C) Understanding that if there is any thing I can do to help, even though I am in someways a stranger, then I will.


I have PM'd my number and E-Mail to you Chris, If ever you need a stranger to talk to, curse at, argue about niff/naff and trivia or this or that or have a giggle with you are always welcome mate.

We have PM'd before reference the Class 70 vs crane upset back in Feb at the South Welsh Docks....
Chin up Chris 'P' Findus, your a good man

Contact me no matter what mate

[Tank]

I'm afraid I don't know any more about it other than what I've just read on Wiki.

I wish you all the best mate, and hope you're back home soon.

[jonclox]

Like others I cant offer any medical advice or help but I  echo the above posts in wishing you well.

[lesmond]

Hi Chris,

No medical help here either (sorry), but I'm with the others above in wishing you all the best, and a speedy restoration to full health.

Your posts and comments have been an inspiration to me since I've been here.

From what I do know of Crohn's disease it's no joke, so if you need any help or support, just ask.

[upnick]

Hi  Chris,   

Sorry  i   cant help with information on  Chrohn's disease but as others have said  wish you all  the  very best & am  sure i  can   say  if you need to  talk   dont hesitate to contact us  here.

[findus]

WOW 

What an amazing group of people.

im speachless.

Thank you all so much for the comments, i feel a billion times better for reading them.

you should all be so proud of yourselfs for being so supportive.

This is how a forum should be.

[Irish Padre]

You're in my prayers Chris!

[Geoff]

Sorry to hear about the disease you have and my heart goes out to you, I suffer from diverticulitis and that is not very nice and have to keep to a certain diet, personally I cannot offer any advice towards any type of medication that is better in the hands of the medical team, all the very best and lets hope the medical team can get you comfortable with your illness.

Take Care.

[longbridge]

Hi there and sorry to hear about your health problems, sadly I cant help with a the medication issue and I guess you can only go with the advice given by specialists.

I had a scare 3 years ago and was told by the heart specialists that I was lucky to be alive, thankfully now I am feeling pretty good and I pray the same will happen to you.

One word of advice is don't search your problem on the internet as a common headache can finish up as a brain tumor, I have done it before and scared the life out of myself for no reason.

Good luck with it all and you can count on the fact that you have a lot of friends on this forum batting for you.

[ToothFairy]

I can't add anything about the specific condition, but I can add something about the steroids. I was diagnosed with large-vessel vasculitis (inflammation of the aorta and everything hanging off it, caused by an auto-immune disorder) back in August last year; the investigation took about 4 months before that. Once the diagnosis was in, just to build up a bit of strength, I was immediately put on oral steroids, and the dose was ramped up to 75mg daily in fairly short order, preparatory to being put on a fairly fierce anti-inflammatory drug. I'm now down to 10mg daily, and dropping steadily. None of the specifics might relate to your condition, but the general point is that I needed the boost to my physical strength. Tremendous support from friends and family was vital, of course, but the steroids certainly helped. I hope to be back to normal (or what passes for normal in my case!) by the end of this year.

Best of luck,

- Michael

[findus]

Hi all, sorry the replys have been slow and at points not at all, i have read every single message and have felt totaly amazed at the level of care for peopel you guys have.

I have just arrived home from my week in hospital, i have decided to take the drug treatment route to see if this can help sort my condition it will last between 6 months to a year for the steroids to work and do what they are ment to do..

in the meantime i will try my best to post to the full of my potential but as the docs have advised my abilities and cleverness will let me down at times, i hope this wont upset anybody but please if you feel im making no sence tell me so i know and can try and correct the mistakes..

THANK YOU ALL FOR YOUR CARE AND SUPPORT X X X  

[upnick]

Hi Chris,   

Glad your back  home     good luck with the drug treatment keep  us informed look forward to seeing your posts   

[jonclox]

Chris it seems that many of us suffer from illnesses/deseases for which there arnt any magic cures BUTwe can learn by changing lifestyles etc we can lead a reasonably normal life and who knows only next month that magic treatment that will cure us could be invented.
The answer is never give up.........change and fight it the best you can.
Good luck now your home.

[longbridge]

Pleased you are home, keep focused and always try to keep smiling, good luck with the medication and we are all looking forward to reading your posts in the future.